Down Syndrome and Breastfeeding (Resources)

July 26, 2011. Posted in: Baby's Health,BF Concerns: Child,Common Newborn Concerns

Print resources

Danner, S. and Cerutti, ER. Nursing Your Baby with Down Syndrome. Waco, Texas: Childbirth Graphics, 1984.

Genna, Catherine Watson, editor. Supporting Sucking Skills, Second Edition. Woodhaven, NY: Jones & Bartlett Learning, 2013.

Good Mojab, C. Congenital disorders in the nursling. Unit 5. Lactation Consultant Series II. Schaumburg, IL: La Leche League International, 2002.

La Leche League International. Breastfeeding a Baby with Down Syndrome. Schaumburg, IL: La Leche League International, 1997. LLLI pamphlet providing education and support for breastfeeding a baby with Down Syndrome. (No 528-24 in the LLLI catalog.)

La Leche League International. The Womanly Art of Breastfeeding Sixth edition. Schaumburg, IL: La Leche League International, 1997, ISBN 0452279089. pp. 290-291.

Mohrbacher, N. and Stock, J. The Breastfeeding Answer Book, Revised ed. Schaumburg, Illinois: La Leche League International, 1997. pp. 304-08.

Naseef, R. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child With a Disability. Carol Publishing Group, 1997, ISBN 1559723777. The author, a psychologist and father of a child with autism, helps parents come to terms with their own feelings surrounding their special needs children and explains the need for nurturing and loving guidance for these children. The joys and frustrations of life with a disabled child are candidly and realistically portrayed. Includes a long list of resources and a bibliography.

Rosenfeld-Johnson S. Preventing Oral-Motor Problems in Down Syndrome. Advance for Speech-Language Pathologist and Audiologists 4 August 1997. This article recommends that during breastfeeding the mother hold the child in a position in which his or her mouth is lower than the ears (with baby’s chin tucked slightly) in order to improve long-term oral-motor skill levels.

Sears, W. and Sears, M. The Baby Book: Everything You Need to Know About Your Baby – From Birth to Age Two. Little Brown & Company, 1993, ISBN 0316779059. The authors, parents of a child with Down Syndrome, discuss breastfeeding babies with Down Syndrome (pp 181-182) and the special challenges and rewards of parenting these children (pp 395-400).

Sears, M. and Sears, W. The Breastfeeding Book. Little Brown & Co., 2000, ISBN 0316779245. pp. 213-214.

Stray-Gunderson, Karen, editor. Babies With Down Syndrome. Woodbine House, 1995, ISBN 0933149646.

 

Internet resources

Breastfeeding a baby with Down Syndrome

Welcome To Holland by Emily Perl Kingsley

Special Advantages of Nursing Your Baby with Down Syndrome by Becky Flora, BSed, IBCLC

PDF Breastfeeding an infant with Down Syndrome from Children’s Hospitals and Clinics Minneapolis and St. Paul, MN

PDF Breastfeeding the Hypotonic Infant – Academy of Breastfeeding Medicine Clinical Protocol #16. BREASTFEEDING MEDICINE. Volume 2, Number 2, 2007.

Breastfeeding Your Baby with Down Syndrome from the New Zealand Down Syndrome Association

Nursing baby with Down’s Syndrome (Q&A) by Cher Sealy, RN, BSN, IBCLC, LLLL

Nursing a baby with Down Syndrome (Q&A) by Anne Smith, BA, IBCLC

Nobody Smiles Like I Do (Breastfeeding a Baby with Down Syndrome and a Heart Condition) by Dee Cole. NEW BEGINNINGS, Vol. 15 No. 4, July – August 1998, p. 105.

A Father’s Loving Care (Parenting a Baby with Down Syndrome) by Cecily Woodard-Spencer. NEW BEGINNINGS, Vol. 15 No. 2, March – April 1998, p. 46-47.

Breastfeeding Babies with Special Needs. La Leche League International FAQ.

Congenital Disorders: Implications for Breastfeeding by Cynthia Good Mojab, MS. LEAVEN, Vol. 35 No. 6, December 1999-January 2000, pp. 123-28. Discusses how a LLL Leader can provide information and support to mothers of babies with special needs.

Helping a Mother with a Baby Who Is Reluctant to Nurse by Karen Zeretzke, MED, IBCLC, RLC. LEAVEN, Vol. 35 No. 5, October-November 1999, pp. 99-103. A challenging situation can become a rewarding experience when a Leader knows how to help.

Nurturing the Special Infant. An About.com multi-guide feature dedicated to raising awareness about the healthy benefits of breastfeeding your precious baby.

 

General Information

Down Syndrome: Health Issues by Dr. Len Leshin, MD, FAAP. This website, created by a pediatrician who has a son with Down Syndrome, is an excellent source of information and resources.

Down Syndrome by William Sears, MD. Parenting experts William and Martha Sears have a son with Down Syndrome. This is the portion of their parenting site that discusses Down Syndrome.

Welcoming Babies with Down Syndrome by Pam Wilson

Parenting A Child with Down Syndrome by Rachael Smith. A mother’s view of Down Syndrome, from Suite101.com

Down Syndrome support board at iVillage.com

Down Syndrome Resources from About.com

Growth Charts for Children with Down Syndrome by Greg Richards

Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision edited by William I. Cohen, MD. From Down Syndrome Quarterly, Volume 4, Number 3, September, 1999.

Breastfeeding advocates who have children with Down Syndrome

Katherine Dettwyler, PhD

Becky Saenz, MD

William & Martha Sears

Gwen Gotsch

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